Thursday 22 January 2015

Two Cost Comparison’s for Cardiac Arrest Prevention Programs


 
Brock Reuther died as a result of a sudden cardiac arrest experienced while playing volleyball at his Alberta High School in May of 2012. Since that day Brock’s mom Kim has been advocating for programs to prevent other families from experiencing the pain the Reuther’s have gone through and it has been, to say the least, an uphill battle.     http://projectbrock.com/

I was speaking with Kim this week and shared with her two comparators that I often use when speaking about preventing sudden cardiac arrest in youth. She asked if I could send them to her in writing so here they are.

The HPV (Gardasil™) Vaccine vs. ECG Screening for Heart Arrhythmia


In August of 2007 the Government of Ontario announced it would spend $39 million to provide every Grade 8 girl in the province with the vaccine for Human Papillomavirus (HPV) which is known to be a cause of many cervical cancers. That works out to a little over $400.00 per child. Cervical cancer claims the lives of 150 women of all ages in Ontario each year and is the second most common type of cancer in women between ages 22 and 44.  This is an expensive but worthwhile prevention program that will assuredly save young lives.

For many years patient advocate groups in Canada have been seeking funding and support for a pilot study into ECG screening of young teens. Many advocates would like to see the screening process include Echocardiogram as well. Published studies show that ECG alone can be over 80% effective at identifying children at-risk for sudden cardiac arrest and when Echo is added screening will identify over 90% of those at-risk.  The tests are non or minimally invasive and very inexpensive. The Ontario Health Insurance Plan billing code for an ECG to be acquired and read by a physician is $11.05. A targeted Echo is a little more expensive at $33.50.  For 10% of the cost of an HPV vaccine we could protect all young people from a far more prevalent and preventable cause of death – Sudden Cardiac Arrest.

A $250,000 grant would easily fund a pilot study that could gather, study, analyze, weigh the values and publish the results of screening tests for over 5,000 youngsters. Every year 700 young people die suddenly of cardiac causes in Canada - 200 in Ontario, 65 in British Columbia, 60 in Alberta, etcetera.   An ECG/ECHO screening program for teenagers is relatively inexpensive and assuredly would save hundreds of young Canadians from sudden death.

Note: ECG screening of elite athletes in northern Italy has reduced sudden cardiac arrest deaths in that population by 89%.

Anaphylaxis Awareness vs. Sudden Cardiac Arrest Awareness


In the spring of 2012 I gave a talk on Recognizing and Managing Cardiovascular Emergencies to 250 Human Resources professionals from across Ontario. A portion of the talk included a discussion of cardiac arrest in youth.

·        I asked for a show of hands to the question “How many of you know that you cannot send a child to school with peanut products in their lunch?”

o   Virtually every hand in the room went up.

·        I then asked “How many of you know that “fainting” is a common warning sign of a potentially lethal heart rhythm disorder?”

o   Perhaps 10 hands went up.

·        I then asked “How many kids in Ontario will die this year from peanut allergies?”

o   The answer is probably none, perhaps one and if it is a very bad year two.  Note : 2 deaths in ON since 2010

·        Finally I asked “How many young people will die in Ontario this year as a result of Sudden Cardiac Arrest?”

o   The answer is 200 – a palpable buzz went through the room.

It is fantastic that the Provincial Government and the School Boards that it funds have invested so much money, time and effort into creating universal awareness and compliance for strategies for preventing two or three peanut allergy deaths each decade. It is frustrating and nonsensical that the same Government and the same School Boards have invested virtually nothing into awareness and prevention strategies for the most common cause of death on school properties and the most common medical cause of death amongst Ontario children.

Every patient advocate probably believes that research and programming for their disease is underfunded. Those of us working to protect the lives of children at-risk for Sudden Cardiac Arrest can look around and see tens of millions of dollars being spent on prevention strategies for diseases that cause less than 1% of the suffering brought on by Heart Arrhythmia Diseases. We would never want or ask Governments to cut back that spending, we are simply asking them to listen to our story and act on our requests for similar consideration. Again this year 700 young Canadians will die suddenly of cardiac causes, many of those deaths should be prevented.

Wednesday 7 January 2015

Sudden Cardiac Arrest Prevention Strategies for your League

Share in the Knowledge - not in the Tragedy

PACED, Parents Advocating for Cardiac Education, is hopeful that 2015 will be a watershed year for heart arrhythmia awareness and sudden cardiac arrest prevention in Canada. A little basic knowledge of heart arrhythmia diseases and their warning signs can go a long way to reducing the toll that sudden cardiac arrest takes on our children and families. Many of the young athletes that die each year exhibit warning signs in the days weeks or months prior to their death. PACED would like the opportunity to speak to the executive, coaches, trainers and parents of your minor sport organization and share simple strategies that can protect young athletes.
If your organization is based in southern Ontario, from London to Barrie to Oshawa to Niagara Falls, PACED will be happy to come out to an upcoming meeting and deliver a brief but comprehensive overview of Inherited Heart Rhythm Disorders that addresses the critical questions:
·        What is an Inherited Heart Rhythm Disorder (IHRD)?

o   Are there other diseases that can cause a child to experience sudden cardiac arrest?

·        What are the warning signs of an IHRD?

·      How should our organization and parents respond when warning signs are observed?

·        Is there value in a “return to play” policy for athletes that have exhibited warning signs?

·        Are there pre-participation screening tools for IHRD?

·        What is the role of genetics in the recognition and management of an IHRD?

·        There is an AED (Defibrillator) at the arena; won’t that prevent sudden cardiac arrest?

·        What happens after a positive diagnosis for an IHRD?

PACED works closely with Paediatric Cardiologists from across Canada to ensure that our message is accurate and current. The evidence based recommendations that we share are already being implemented by sport organizations across the United States and Europe. To date 13 US States have legislation passed or pending that make sudden cardiac arrest prevention programs mandatory for school and community sport organizations.
Sudden Cardiac Arrest is the leading cause of young person deaths that occur during participation is sport and play. There have been a least eight on ice deaths over the last nine years of Canadian minor hockey players. In Ontario 200 young people die suddenly of cardiac causes each year - not all of these deaths occur during participation in sport. Building communities that are more sensitive and responsive to the warning signs of potential heart arrhythmia will go a long way to reducing these numbers and the only cost is the time it takes to learn the facts.
It takes 45 minutes to acquire the tools to prevent the Sudden Cardiac Death of an Athlete
Every time a young athlete dies it is a tragedy.  When that child exhibited known warning signs of heart arrhythmia in the weeks or months prior to their death and no one picked up on those signals the tragedy is deepened. PACED is asking for 45 minutes of your group's time to help you start building the safety nets that will prevent these tragedies.
The knowledge that PACED has shared with the  Ontario sports community has already led to several children being correctly diagnosed with an IHRD and receiving the treatment that they need to lead a long and productive life. Please pick up the phone or send an e-mail inviting PACED to come and present at an upcoming league meeting.
Blake Hurst, Co-Founder of PACED may be reached at (905) 527-0462 or
info@paced.ca